Japanese Sample Collection, 2002 - 2003
Scope and Contents
Documents regarding the community engagement/sample collection collaboration with the University of Tokyo Japan. NHGRI and ELSI had to negotiate with Dr. Nakamura in Japan who changed the protocol in Riken for informed consent for the samples in Japan. There are many e-mails with Jean McEwen, Francis Collins, and the NHGRI staff with talking points to settle disagreements with the professors in Japan.
Dates
- Creation: 2002 - 2003
Conditions Governing Access
This collection may contain materials with sensitive or confidential individual and patient information, as well as sensitive information about the grant funding process, that is protected under federal or state right to privacy laws and regulations. As such we are unable to make fully available publicly much of these materials. Those that have been made available have been carefully redacted so as to remove all personally identifiable information (PII).
Researchers can request access to items through this site but should be aware that many items will require extensive redactions, or in some cases will be unable to be made available. In these cases, NHGRI History of Genomics staff will work with researchers as much as possible to fullfill requests but we cannot guarantee full compliance with every request.
Extent
From the Collection: 98 Box (98 boxes of papers, books, brochures and other printed materials.)
Language of Materials
From the Collection: English
Repository Details
Part of the NHGRI Human Genome Project (HGP) Archive Repository
Building 31, Room 4B09
31 Center Drive, MSC 2152
9000 Rockville Pike
Bethesda Maryland 20892 USA
zach.utz@nih.gov