Celera/NCBI (National Center for Biotechnology Information) MOU (Memorandum of Understanding), 1999 - 2001
Scope and Contents
Correspondence regarding the importation of commercial data into Genbank, and Celera's plan to create their own databases. Adam Felsenfeld contacted other NHGRI staff out of concern over how Celera planned to sell information about disease risk to doctors, employers, and insurance companies. And Francis Collins hoped to encourage as much of Celera's human consensus sequence data as possible to end up in GenBank as their responsibility for the science community. Correspondence between Dr. Maria Freire of the NIH Office of Technology Transfer, Harold Varmus, Francis Collins, David Lipman of NLM, and Michael Gottesman also included creating a more detailed and narrower Memorandum of Understanding between Celera and NHGRI with legal framework so it was clear that Celera was a for-profit corporation but still should deposit proprietary and non-proprietary genomic information into GenBank to ensure public access while preserving Celera's commercial interests and patent rights. The NIH staff struggled to get Celera and Craig Venter to agree to this understanding, as Craig Venter did not want to agree to anything on paper, and their recent statements on data release reflected increasingly narrower conditions for access. Documents also include correspondence with Michael Morgan of the Wellcome Trust, and Richard Durbin of the Sanger Institute for feedback.
Dates
- Creation: 1999 - 2001
Conditions Governing Access
This collection may contain materials with sensitive or confidential individual and patient information, as well as sensitive information about the grant funding process, that is protected under federal or state right to privacy laws and regulations. As such we are unable to make fully available publicly much of these materials. Those that have been made available have been carefully redacted so as to remove all personally identifiable information (PII).
Researchers can request access to items through this site but should be aware that many items will require extensive redactions, or in some cases will be unable to be made available. In these cases, NHGRI History of Genomics staff will work with researchers as much as possible to fullfill requests but we cannot guarantee full compliance with every request.
Extent
From the Collection: 98 Box (98 boxes of papers, books, brochures and other printed materials.)
Language of Materials
From the Collection: English
Repository Details
Part of the NHGRI Human Genome Project (HGP) Archive Repository
Building 31, Room 4B09
31 Center Drive, MSC 2152
9000 Rockville Pike
Bethesda Maryland 20892 USA
zach.utz@nih.gov