Scope and Contents

Mary Ellen Conley speaks about treatments for SCID, goals for SCID therapy; bone marrow transplant risks and beenfits

Scope and Contents From the Collection:

This collection contains a large variety of media materials, including news reports, interviews with staff, press conferences, lab footage, symposia, meetings, and others. Formats include VHS, audio cassette, BetaCam, DVD, CD, and others. The majority of the materials were created during the years of the Human Genome Project (1990-2003) but also include more recent materials.

Scope and Contents

Francis Collins opens press conference announcing that a gene for Parkinson's disease has been found;

Scope and Contents

Explanation of genetics and how genes make people who they are.  Studying genes in mice and how the genes work; explanation of dominant and recessive genes; search for Cystic Fibrosis gene

Scope and Contents

Jennifer Pock introduces Tom Moran, President of the Immune Deficiency Foundation; Alan Flake speaks about fetal development and formation of bone marrow, bone marrow transplants in utero for babies with SCID - has not been tried; experiments on sheep; Rebecca Buckley speaks about treatments for SCID and outcomes;

Scope and Contents

Jennifer Pock introduces Susan Black; Black speaks about reproductive options for carriers of SCID gene; pre-implantation genetic testing; Ron Green moderates discussions - 1st one on prenatal decision-making; 2nd one on carrier status testing; Dr Jessica Davis and Dr John Fletcher speak about prenatal testing and issues prior to discussion;

Scope and Contents

Barbara Ballard, Stephen Croft and Michael Langan speak about self organization, outreach and community initiatives for rare disorders such as SCID; public policy issues; discussion and questions with audience

Scope and Contents

How advances in computer technology are helping scientists unlock the secrets of the human genome; Dr Vinton Cerf gives overview of the internet and where its going; Dr Eric Landers talks about genetics and the Human Genome Project, genetics and genomics, history of the study of heredity, using genetics to find cures/prevention for diseases, ethical use of genetic information

Scope and Contents From the Collection:

This collection contains a large variety of media materials, including news reports, interviews with staff, press conferences, lab footage, symposia, meetings, and others. Formats include VHS, audio cassette, BetaCam, DVD, CD, and others. The majority of the materials were created during the years of the Human Genome Project (1990-2003) but also include more recent materials.

Scope and Contents From the box - "Explore how economic incentives and new technologies have fostered the use of surgery and other expensive medical interventions.  Leading heart specialists now question the use of many routine procedures.  How "scientific" is medical practice? Are surgical procedures for heart disease properly tested? In Canada, the testing of one procedure proved it to be a failure.  In England, cardiologists are running random trials to test medical options for heart disease.  In the U.S.,...