Hadassah's 85th National Convention - Track Bet- Medical Advocacy...My life, my privacy, my dignity, 1999-07-26T00:00:00+00:00
Scope and Contents
Genetic discrimination and medical records privacy - genetic testing for Ashkenazi Jewish Community - BRCA1 and colo-rectal cancer; Rabbi Gerald Wolpe, Dr Francis Collins, Professor Karen Rothenberg, and Congresswoman Louise Slaughter speak. Gerald Wolpe speaks about testing boundaries intellectually, genetics in relation to Jewish law; Francis Collins speaks about issues of genetics and civil rights, discrimination, explanation of genetics and where its going, ethics, legal and social implications (ELSI), Tay Sachs disease, Human Genome Project; BRCA1; Karen Rothenberg speaks about eugenics and discrimination against Jews in early 1900s, BRCA1 study, "genetic discovery a dilemma for US Jewry", genetic discrimination; Louise Slaughter speaks about legislation to combine social policy and science, prevent genetic discrimination by insuance companies and protect privacy of genetic information,
Dates
- Creation: 1999-07-26T00:00:00+00:00
Conditions Governing Access
The majority of the materials within this finding aid have been digitized by the History of Genomics team. That being said, there are several instances where materials were either damaged or were in poor condition. In these cases we cannot guarantee the availability or accessibility of all materials.
Some materials may contain sensitive information or personally identifiable information (PII), in which case we cannot guarantee full unfettered access upon request. The History of Genomics Team will work to make a determination on a case by case basis as to the access of materials.
Extent
From the Collection: 60 Box (Each box contains a variety of formats video and/or audio media. These include cassette tapes, BetaCam videos, or VHS tapes. )
Language of Materials
From the Collection: English
Repository Details
Part of the NHGRI Human Genome Project (HGP) Archive Repository
Building 31, Room 4B09
31 Center Drive, MSC 2152
9000 Rockville Pike
Bethesda Maryland 20892 USA
zach.utz@nih.gov