Our Genes Our Choices - Who Gets to Know?: Genetics and Privacy (Fred Friendly Seminar), 2005-06-24
Scope and Contents
From the video case - When it comes to genetic testing, how much should a patient be told? If the news is bad, who else should the patient inform? And could - or should - such privileged information be made available to employers, insurance companies, and others? This Fred Friendly Seminar moderated by Harvard Law School's Arthur Miller offers a compelling discourse on the far reaching ethical, social, legal and economic implications of genetic testing. Panelists include U.S. Supreme Court Justice Stephen Breyer; Nancy Wexler; Cynthia McFadden (ABC News senior legal consultant); Nadine Strossen (president of the ACLU); and Representative Louise McIntosh Slaughter (D-NY).
Dates
- Creation: 2005-06-24
Conditions Governing Access
The majority of the materials within this finding aid have been digitized by the History of Genomics team. That being said, there are several instances where materials were either damaged or were in poor condition. In these cases we cannot guarantee the availability or accessibility of all materials.
Some materials may contain sensitive information or personally identifiable information (PII), in which case we cannot guarantee full unfettered access upon request. The History of Genomics Team will work to make a determination on a case by case basis as to the access of materials.
Extent
From the Collection: 60 Box (Each box contains a variety of formats video and/or audio media. These include cassette tapes, BetaCam videos, or VHS tapes. )
Language of Materials
From the Collection: English
Repository Details
Part of the NHGRI Human Genome Project (HGP) Archive Repository
Building 31, Room 4B09
31 Center Drive, MSC 2152
9000 Rockville Pike
Bethesda Maryland 20892 USA
zach.utz@nih.gov