The HuGEM Project: Issues of Genetic Privacy and Discrimination
Scope and Contents
Panel discussion (lots of audience participation) - Insurance discrimination and how to deal with it. Does genetic testing impact on getting insurance? Families dealing with diagnosis of genetic defect. Genetic testing of children, dealing with results. Discrimination in the workplace, someone with Marfans syndrome
Dates
- Creation: Majority of material found within 1990 - 2010
Conditions Governing Access
The majority of the materials within this finding aid have been digitized by the History of Genomics team. That being said, there are several instances where materials were either damaged or were in poor condition. In these cases we cannot guarantee the availability or accessibility of all materials.
Some materials may contain sensitive information or personally identifiable information (PII), in which case we cannot guarantee full unfettered access upon request. The History of Genomics Team will work to make a determination on a case by case basis as to the access of materials.
Extent
From the Collection: 60 Box (Each box contains a variety of formats video and/or audio media. These include cassette tapes, BetaCam videos, or VHS tapes. )
Language of Materials
From the Collection: English
Repository Details
Part of the NHGRI Human Genome Project (HGP) Archive Repository
Building 31, Room 4B09
31 Center Drive, MSC 2152
9000 Rockville Pike
Bethesda Maryland 20892 USA
zach.utz@nih.gov