The HuGEM Project: Working Together to Improve Genetic Services
Scope and Contents
Human Genome Project Educational Model - overview about providing services to people with genetic diseases. Panel of speakers. Includes personal stories dealing with Downs Syndrome, politicians making sure everyone can get insurance, creating support group for people with rare birth defects. Includes question and answer session between audience and panel
Dates
- Creation: Majority of material found within 1990 - 2010
Conditions Governing Access
The majority of the materials within this finding aid have been digitized by the History of Genomics team. That being said, there are several instances where materials were either damaged or were in poor condition. In these cases we cannot guarantee the availability or accessibility of all materials.
Some materials may contain sensitive information or personally identifiable information (PII), in which case we cannot guarantee full unfettered access upon request. The History of Genomics Team will work to make a determination on a case by case basis as to the access of materials.
Extent
From the Collection: 60 Box (Each box contains a variety of formats video and/or audio media. These include cassette tapes, BetaCam videos, or VHS tapes. )
Language of Materials
From the Collection: English
Repository Details
Part of the NHGRI Human Genome Project (HGP) Archive Repository
Building 31, Room 4B09
31 Center Drive, MSC 2152
9000 Rockville Pike
Bethesda Maryland 20892 USA
zach.utz@nih.gov