Eric Juengst paper "Self-Critical Federal Science? The Ethics Experiment within the U.S. Human Genome Project", ELSI [Ethical, Legal, and Social Issues], "Outline of Plan for ELSI Working Group Evaluation", ELSI Mission Statement, 1995 - 1999

File — Box: EJ-10, Folder: 30

Identifier: 29

Staff Only

Eric Juengst essay, "Self-Critical Federal Science? The Ethics Experiment Within the U.S. Human Genome Project"

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Scope and Contents

From the Collection:

Elke Jordan, Ph.D. was Deputy Director at the National Human Genome Research Institute from 1988-2002, almost the entirety of the Human Genome Project. Her collection contains a wide variety of files from the HGP and before, including correspondence, meeting notes, memos, and important planning documents.

IMPORTANT NOTE: Numerous items described in the finding aid have not been digitized and there is no guarantee that any specific file or folder will be able to be made available. However the vast majority of the files have been digitized and are available.

Dates

Creation: 1995 - 1999

Conditions Governing Access

This collection may contain materials with sensitive or confidential individual and patient information, as well as sensitive information about the grant funding process, that is protected under federal or state right to privacy laws and regulations. As such we are unable to make fully available publicly much of these materials. Those that have been made available have been carefully redacted so as to remove all personally identifiable information (PII).

Researchers can request access to items through this site but should be aware that many items will require extensive redactions, or in some cases will be unable to be made available. In these cases, NHGRI History of Genomics staff will work with researchers as much as possible to fullfill requests but we cannot guarantee full compliance with every request.